Miscarriage can be a very unhappy, frightening and lonely experience.
The Miscarriage Association acknowledges the distress associated with pregnancy loss and strives to make a positive difference to those it affects.
We have the knowledge to help.
Everyone affected by pregnancy loss gets the care, support and information that’s right for them.
- To ensure that everyone knows about, acknowledges and respects pregnancy loss in the same way they do with pregnancy
- To change the perception of pregnancy loss so that nobody affected feels their loss should be hidden
- To provide and promote accessible and high quality support and information to all who need it
- To provide and promote relevant training and information to healthcare professionals
- To promote and support research and disseminate information to minimise medically preventable pregnancy losses
- To ensure there is no preventable harm from pregnancy loss.
- Pregnancy loss is a significant event
- Nobody should die or come to serious harm as a result of pregnancy loss
- People affected by pregnancy loss should receive accurate information and sensitive support
- Pregnancy loss is a taboo for many in our society and people should be able to talk about it openly and freely if they choose to
- The number of pregnancy losses can and should be reduced
- Everyone affected by pregnancy loss should know about the Miscarriage Association
Our five-year mission
Everyone affected by pregnancy loss receives the care, support and information that they need. No-one suffers preventable harm from pregnancy loss.
There are three main areas of focus for the Miscarriage Association in the coming five years:
- Improving the support, information and care provided to people affected by pregnancy loss
- Reducing the taboo around pregnancy loss
- Developing the organisation to sustain that mission
The rationale and the challenges
Despite medical advances, miscarriage, ectopic pregnancy and to a lesser extent molar pregnancy continue to be common complications of pregnancy. There is no evidence that numbers are decreasing and it is likely that earlier pregnancy testing and thus awareness of pregnancy has also increased awareness of loss. For many, this is the time they seek information and support as well as good medical care; and the ways in which they seek these services continue to change.
The M.A. has responded well to increased demand for online information and support, both via the website and through social media. Service users particularly value our written and online information, which is also highly rated by health professionals. At the same time, we have noted the decrease in demand for local volunteer peer support and responded accordingly.
Our first challenge over the next five years, therefore, is to improve and increase our information and support provision, in line with changing and increasing demands; and to find better ways to promote and support good miscarriage care in hospital and primary care.
Despite its high incidence, pregnancy loss is still something of a taboo and this can increase the distress of pregnancy loss. Survey respondents identify this taboo as the issue they most want to change and reducing the taboo is likely to have the biggest impact on problems of loneliness, lack of understanding and poor support. There are some signs that the taboo is beginning to lessen but the pace needs to increase so that we can make the impact achieved by organisations like Stonewall, SANE and MENCAP on issues such as homosexuality, mental illness and disability.
Our second challenge over the next five years, therefore, is to reduce the taboo of pregnancy loss.
The Miscarriage Association is a small organisation, working at the very limits of its capacity, both staffed and voluntary. It is perceived as being larger than it is and has ambitions to match. The change strategy that we are adopting requires organisational change to sustain it: new skills, increased capacity, rebalancing of focus, infrastructure development and a strong funding base.
Our third challenge over the next five years, therefore, is to grow and develop the M.A. so that it can embrace and manage the growth and change strategy needed to achieve its goals.
These three challenges will form our five-year mission. By 2020 we aim to achieve the following:
- People affected by pregnancy loss will be more likely to receive the information, support and care that they need
- There will be less of a taboo around pregnancy loss
- The M.A. will be a better and more sustainable organisation
 Pregnancy loss refers to any/all of the following: miscarriage, ectopic pregnancy, molar pregnancy.